No it’s not.
We usually have guidelines and protocols to follow which minimise the chance of harm and standardise care. Here we’re left with nothing, unsure what we’re allowed to do or not, unsure what we should do. There have already been multiple reports of mismanagement of pre-natal care resulting in deaths because of this.
Crispr is the exception:
Most proposals for cures are a fairly simple (and cheap) therapeutic target that will only work for one condition or even just a subset of cases within that condition.
That’s the lenient interpretation I’d hope.
But we’re not an alternative medicine group or anything. If you look into their shareholder meetings the public info seems to be that they judge whether investments are worth it by potential return on investment, and well a lifelong treatment is always going to be more profitable for them than a cure.
Completely true. But there would be fewer of them.
It’s crazy that when my research team comes up with a therapeutic target we believe might lead to curing a disease, we get crickets from drug companies. But when we present therapeutic targets for long term treatment, we get lots of interest.
Sounds like my colleagues. But since medicine is a hierarchical culture that values conformity over critical thought, that type of behaviour tends to actually work in favour of the person.
Although it’s true that nurses can have some fucked up beliefs, don’t underestimate doctors. Some of my colleagues are ableist, misogynistic, bigoted, power hungry, with a superiority complex. I think these are the kind of Gps and specialists making r/medicine so awful.
That aside, as a medical professional, I have to say r/medicine is such a cesspool of a subreddit, and I don’t say this lightly.
They regularly ridicule patients and specific conditions, harbour prejudiced views towards poor people and people from minority groups, and generally push pseudoscientific nonsense.
It’s a really disheartening subreddit to visit when you’ve got your patient’s best interests at heart.
Apart from that, I do agree with their view on UnitedHealth’s CEO.
if youve got to any, could you tell me what you think? It’s always useful to know what I should recommend to my patients to show their friends and family.
This channel has a bunch of short (5 mins long videos) about ME to educate people.
There’s also a slightly outdated (but still worth the watch) oscar nominated documentary about it, which has been made free and put on youtube recently It’s Unrest by Jennifer Brea
One of my patients also runs this excellent website with a bunch of resources about the disease.
I’m sorry I really shouldn’t be giving medical advice. It’s been a long time since I studied neurology. I’ve spent the past decade only on post viral diseases like ME.
But please please find yourself a doctor that listens and cares if that is possible. Because it clearly sounds like you need tests and you need a doc thats available for you. Maybe join some local MS support groups and ask if anyone has docs that do a really good job and try from there.
I’ll tell you this as a doctor. I would stay the hell away from some of my colleagues. Not every doctor is anywhere near good at their jobs. Some don’t care, some barely passed and don’t want to learn anything new, some like to always assume their patients have psychological problems. Find yourself a good doctor who is proactive and cares, and everything will be so much easier. Sending you good luck.
Damn I can’t find the original gif from the movie. Here’s a low quality edit I could find.