FundMECFSResearch

cross-posted from: https://lemmy.blahaj.zone/post/22577442

A study involving over 3,000 participants – both patients and clinicians – found that these misdiagnoses (sometimes termed “in your head” by patients) were often associated with long term impacts on patients’ physical health and wellbeing and damaged trust in healthcare services.

More than 80% said it had damaged their self-worth and 72% of patients reported that the misdiagnosis still upset them, often even decades later. Misdiagnosed patients also reported lower levels of satisfaction with every aspect of medical care and were more likely to distrust doctors, downplay their symptoms, and avoid healthcare services. As one patient reported, it “has damaged my trust and courage in telling doctors very much. I even stopped taking my immunosuppressive medicine because of those words”.

Following these types of misdiagnoses, patients often then blamed themselves for their condition, as one individual described: “I don’t deserve help because this is a disease I’ve brought on myself. You go back to those initial diagnosis, you’ve always got their voices in your head, saying you’re doing this to yourself. You just can’t ever shake that. I’ve tried so hard.”

One patient described the traumatising response their doctor’s judgement had on them: “When a rheumatologist dismissed me I was already suicidal, this just threw me over the edge. Thankfully I am terrible at killing myself, it’s so much more challenging than you think. But the dreadful dismissiveness of doctors when you have a bizarre collection of symptoms is traumatizing and you start to believe them, that it’s all in your head.”

I’m new to android. (Default android 13, not looking to install custom ROMs because I need this to be very functional and dont have time to deal with bugs).

Anyways, I’ve installed F-Droid, Helix Keyboard and my go to VPN app.

What next? What browser, third party YT player, torrent client, jellyfin client (I’m deaf so need one with opensubtitle integration), email clients, rss aggregator, note taking apps etc. should I install? I’m paralysed by choice.

Is there an equivalent to the ios shortcuts app?

Anyways, I’ll be happy to try out any suggestions. Cheers.

Five years on from March 2020, millions of people still face debilitating symptoms, with huge repercussions on public health and productivity. But politicians are starting to pretend the pandemic never happened.

cross-posted from: https://lemmy.sdf.org/post/30223092

Tibetans have worked to protect the Tibetan language and resisted efforts to enforce Mandarin Chinese. Yet, Tibetan children are losing their language through enrolment in state boarding schools where they are being educated nearly exclusively in Mandarin Chinese. Tibetan is typically only taught a few times a week – not enough to sustain the language.

[...]

[Beijing's] Government policy forces all Tibetans to learn and use Mandarin Chinese. Those who speak only Tibetan have a harder time finding work and are faced with discrimination and even violence from the dominant Han ethnic group.

[...]

Meanwhile, support for Tibetan language education has slowly been whittled away: the government even recently banned students from having private Tibetan lessons or tutors on their school holidays.

Linguistic minorities in Tibet all need to learn and use Mandarin. But many also need to learn Tibetan to communicate with other Tibetans: classmates, teachers, doctors, bureaucrats or bosses.

[...]

The government refuses to provide any opportunities to use and learn minority languages like Manegacha. It also tolerates constant discrimination and violence against Manegacha speakers by other Tibetans.

These [Chinese] assimilationist state policies are causing linguistic diversity across Tibet to collapse. As these minority languages are lost, people’s mental and physical health suffers and their social connections and communal identities are destroyed.

[...]

An advanced type of MRI uncovers significant lung abnormalities in children and adolescents with long COVID, according to a new study published today in Radiology, a journal of the Radiological Society of North America (RSNA).

Good video showing how credit card culture basically makes poor people pay for rich people’s luxury.

The first ever community-funded Long COVID surveillance in Mozambique and Congo started in 2023 thanks to trailblazing researchers.   Outbreaks or intensifications of civil wars have scattered both study participants and clinicians, thus curtailing progress.